What do you guys think of this?
There are in the UK several patient groups – Lipoedema UK, Talk Lipoedema, Lipoedema Ladies – who have done their very best for their members, ladies suffering from this multifactorial condition.
In 2020 the ILA – International Lipoedema Association has published a scientific document looking at the myths and facts about the condition and it’s treatment.
To quote them…”The International Lipoedema Association (ILA) has been founded in 2021 by 60 renowned Healthcare Professionals from 22 countries worldwide to create the best possible treatment for our lipoedema patients by collaborating in an international, diverse, inclusive, and multidisciplinary team approach which is based on clinical evidence, long-standing experience, and a passion for improved therapy outcomes. “
For those of us suffering with lipoedema it was painful reading, however the science is there for all to see and I guess the only positive is that it resets the situation for us all and we know what we have to contend with. Let’s be strong about this.
Please download the document by pressing the button below and send me you comments.
More on the ILA, in their own words.
Strategy and Vision
The International Lipoedema Association (ILA) works dedicated to the following statements:
Ourworldwide VISION is to improve the quality of life among our lipoedema patients’ by offering them evidence based holistic treatment according to their individual needs.
Our MISSION:
We are dedicated to creating the best possible treatment for our lipoedema patients by collaborating in an international, diverse, inclusive, and multidisciplinary team approach which is based on clinical evidence, long-standing experience, and a passion for improved therapy outcomes.
Our values and beliefs
- Courage & Change
- Care & Collaboration
- Passion & Compassion
- Diversity & Inclusion
- Teamwork & Loyality
Our goals:
- Increase knowledge about lipoedema by initiating and/or contributing to research programmes
- Building the bridge between Healthcare Professionals and patients and valuing their knowledge and experience
- Increase an understanding of lipoedema, and its holistic management by creating and/or contributing to the development of education programmes towards Healthcare Professionals and patients
- Work closely with the International Lymphoedema Framework (ILF) and promote international collaboration
- Provide a cross-cultural networking platform through an annual international event
- Help the Health Care Industry understand the underlying needs of lipoedema patients and their healthcare professionals
- Further promote and document best practice with the development of an international minimum dataset
- Facilitate and/or contribute to better access to treatment for patients worldwide
- Promote and support initiatives whose goals are to improve the regional/national/global management of lipoedema anywhere in the world.
- Communicate evidence-based knowledge on lipoedema by implementing and promoting an international, not-for-profit publications strategy
If you would like to visit their website please visit www.theila.net
The End
